Child With Rare Condition Rides Customized Bike for First Time
A child with a rare genetic condition wheeled around Children’s Nebraska hospital in Omaha after he was gifted a customized bike by his physical therapist this September.
Seven-year-old Raanan Albert is just the 28th person in the world to be diagnosed with CLTC-related disorder, a rare chromosomal deletion that results in a variety of impairments.
While attending physical therapy sessions at Children’s Nebraska, Raanan began learning to ride a bike with his physical therapist Angie Pereira-Burbach.
Pereira-Burbach had a special bond with Raanan, according to hospital staff, and went above and beyond to find a customized bike that Raanan could cycle.
Footage from Children’s Nebraska shows Raanan trying out his new bike for the first time, taking it for an inaugural spin around the hospital. Credit: Children’s Nebraska via Storyful
Video transcript
Be delivered to him or whenever he wants.
I guess my goal would be that we would do a couple together.
It's ready and set up for him.
Spiderman Ant, can you look at me so I can get on?
Look at that.
Yeah, go, go, go fix your foot.
Thank you.
Not sure he going, we deliver it to him or whenever he wants.
I guess my goal would be that we would do a couple together.
It's ready and set up for him.
Spiderman Ant, look at me, look at that.
There you go.
Go, go, go your foot.
You, I'm not sure he's going.