Edinburgh mum rushed daughter to hospital after noticing strange rash on her legs

Lucy was diagnosed at the age of 10
-Credit: (Image: ECHC)


The Edinburgh mum of a brave young girl who was diagnosed with an auto-immune condition has praised the NHS team who helped make the experience more 'positive'.

Lucy was only 10 when she first noticed a rash develop on her body and was quickly taken to hospital for a check-up. It was then that she got diagnosed with Henoch Schonlein Purpura (HSP) - an autoimmune condition which affects blood vessels in the skin, guts, joints and kidneys.

Speaking to Edinburgh Live, Lucy's mum, Kate said that her daughter caught a "severe case" and ended up spending three weeks in hospital in December 2022.

Read More: Young Edinburgh woman diagnosed with MND after pal noticed worrying sign

Read More: Edinburgh Weather: Heavy rain and thunderstorms to hit as second weather warning issued

She said: "Lucy was 10 in November 2022 when she first got a strange rash. After visiting A&E we were told it was Henoch Schonlein Purpura which is known as HSP. It’s an autoimmune condition which affects blood vessels in the skin, guts, joints and kidneys.

"She is still seeing her consultant regularly. Doctors said most children get better after a few days, but the next day, Lucy became very sick. The rash spread everywhere, so we took her back to hospital.

"She ended up staying in for three weeks because she couldn't keep any food or water down and was losing a lot of weight. She was put on a drip and given steroids. It took her a long time to recover."

Kate Bordwell
Kate Bordwell -Credit:ECHC

Now, the loving mum is taking on the Edinburgh marathon on Sunday, to help raise money for the Edinburgh Children's Hospital Charity - the team that have worked closely with her family over the years.

She said: "The charity are so amazing, because it was Christmas time, Lucy was sad she was missing school concerts, parties, gymnastics and everything like that.

"The charity put so much fun stuff on for the kids - there were visits every day with football and rugby clubs, acrobats, ballet dancers, storytellers, magic, brass bands…you name it! There were fun movie nights and a silent disco too. There's always help to cheer you up when you're down.

"Since Lucy has just been a visitor rather than staying we have visited the hub a number of times to see the therapy dogs and just have a chat. The hospital would be a much scarier place without the charity."

Speaking to the charity, Kate added that she is "proud" of her daughter and that she hasn't let her condition stop her at all. She said: "The hospital stay was difficult for us. It was a horrible time. Lucy was very distressed during treatments and had to have drips and a tube in her nose. What made it bearable were the daily activities provided by ECHC; every day someone came in to do something special.

"It’s hard for an 11-year-old to have a rare autoimmune disease that she can't easily talk to her friends about. And she needs to keep coming to hospital for regular monitoring of her kidneys. But she hasn’t let it stop her at all. We’re so very proud of how she’s challenged herself and come straight back.

Sign up for Edinburgh Live newsletters for more headlines straight to your inbox

"It’s been a really difficult time but Lucy’s much better now and the future looks good."

You can donate to Kate's fundraiser here.