A short-sighted woman who assumed her persistent and debilitating headaches meant she needed stronger lenses was shocked when she discovered she had multiple sclerosis.
Prescribed glasses when she first experienced headaches, aged 15, ever since, Lauren Percival, 29, had found any recurrence meant she needed a new pair.
But when her optician found no change in her eyesight and conducted an optical coherence tomography (OCT) test, which examines the retina, they detected quadrantanopia, or a loss of vision in one of the quarters of the visual field, which can indicate multiple sclerosis (MS).
Referred to the nearby Torbay Hospital, soon after Lauren, of Torbay, Devon, had it confirmed that she had MS – a lifelong condition affecting the brain and spinal cord – saying: “It came as a complete shock.
“I never expected to be diagnosed with something like MS.
“My headaches started when I was 15 and became a sign that I needed glasses.”
She added: “Since then, I have always assumed any recurrent headaches were linked to needing a new prescription for my lenses.
“Over time, though, my headaches have got progressively worse to the point where I can’t work at the moment, as the pain is too severe.”
Lauren, who lives with her boyfriend who she does not want to name, says everything reached fever pitch in November 2021, after she fainted.
She said: “I felt awful one evening, I was really faint and overheating.
“I vomited and ended up fainting. I went to bed and the next day, my headaches were even worse.
“By the day after that, I woke up with blurred and double vision.”
She added: “The light was hurting my eyes and I was also having balance issues and memory loss.”
Assuming she needed a new prescription, Lauren’s boyfriend helped her walk to their local Specsavers in Torquay.
She said: “They didn’t have any appointments available, but they booked me an emergency appointment for the next day, which was a Monday.”
She added: “When they couldn’t find anything to indicate I needed new glasses, but aware of how bad my headaches were, they did further testing on my retina.
“This flagged up that I have quadrantanopia, which refers to the loss of vision in one of the quarters of the visual field.
“They said it could be a possible sign of a stroke or, more likely at my age, a possible first attack with MS.”
The following day at Torbay Hospital, she had everything from eye and blood tests to balance and coordination tests and a lumbar puncture, to collect spinal fluid for testing.
She said: “They couldn’t pin down what was wrong with me.
“They wanted to keep me overnight, but agreed to let me go home when I promised to return the following morning for an MRI scan.”
Over 60% of people living with MS say that their symptoms get worse in the heat.
And with the #Heatwave set to continue across many parts of the UK – we'd love to hear your top tips for keeping cool in the heat. Share your tips with the MS community below. 😎👇 pic.twitter.com/WtPVdyNPUq
— MS Society UK (@mssocietyuk) June 16, 2022
Lauren’s brain scan immediately identified an abnormality.
She said: “I could see there was some sort of smudge on my brain when I looked at the results and I was placed on a five-day course of high dose steroids, which seemed to ease my symptoms.”
Still without a concrete diagnosis, Lauren went home, only to relapse in January this year.
She said: “I was sent for more MRI scans in May – one on my brain and one on my spinal cord.
“There were two lesions, which is not what anyone wants to hear, but it was at that point that they made the diagnosis.”
Lauren was diagnosed with multiple sclerosis which, according to the NHS, can sometimes cause serious disability, although it can occasionally be mild.
She said: “I am due to start a disease modifying therapy, or DMT in the next few months which will involve self-administered injections at home.
“Doctors are monitoring my health before I start, which is routine, because the treatment could make me more susceptible to things like chest infections, colds, and flu-like symptoms.
“Everyone with MS is affected by the condition differently, although there are some similarities. For me, it really affects my vision.”
She added: “I have good days and bad days but I’m in a certain amount of pain every day.
“I struggle mostly with my peripheral vision, which affects my mobility, because I can very easily walk into something or someone not knowing they’re there. I struggle with double vision too.
“I don’t drive, but I wouldn’t be allowed to if I wanted to now.”
Still, Lauren says it is a relief to have a diagnosis.
She said: “Doctors think I went undiagnosed for three years.
“If my MS had gone undiagnosed for any longer, I could have ended up with more lesions on my brain which could have affected my vision further.”
Lauren will always be grateful to her optician for spotting that something was wrong and is now keen to encourage more people to get their eyes checked.
She said: “It’s easy to forget just how important eye tests are.
“Opticians don’t just check your vision and, as in my case, they can flag up serious health problems.”
Delays to treatment and care can change your life forever. Over half (55%) of adults living with a neuro condition like MS, experienced delays to routine appointments with specialists in the last year. #BackThe1in6 and sign the petition: https://t.co/nOFkph4DHj pic.twitter.com/ozrCnHcOB5
— MS Society UK (@mssocietyuk) June 9, 2022
She added: “I’ve heard before that sight is the one sense people would want to keep if they lose all the others. It’s extremely important.
“I’m grateful to have been diagnosed when I was, as my MS could have progressed without me knowing.
“If you notice anything unusual about your vision, I really urge you to get your eyes checked.”
Simon Simmonds, Ophthalmic Director of Specsavers’ Torquay branch, confirms the importance of regular eye tests.
He said: “Lauren’s story shows the importance of eye tests, because optometrists are able to pick up the early signs of a person’s condition and refer them for treatment if required.
“It’s essential that people keep up with their regular eye-health checks, because not everyone realises that a sight test is more than just showing someone that they need a new prescription for their glasses or not.”